I must share (with permission) this writing posted by a fellow Duchenne Mom. She received it from a friend and shared it with the rest of us in a DMD Mom Facebook group I am in. Really needed it this morning waking up so tired and wondering where I will get the energy for Ashton’s very busy month of medical appointments (local, across the state and out of state), Special Education Day Camp, MDA Summer Camp and regular education Summer School. Just the reality of summer vacation when you have a medically complicated child. The unknown writer seems to have a keen sense of this.
I See You
I see you running your child to therapy when your friends are running their kids to Little League or ballet.
I see you slipping out of the conversation when your friends are all chiming in about milestones and test grades.
I see you constantly juggling appointments and meetings.
I see you sitting at your computer for hours researching what your child needs.
I see you cringe when people whine about what feels like petty things.
I see you spread thin but still going the extra mile for your family.
I see you digging for depths of strength you never dreamed you had.
I see you showing appreciation to the teachers, therapists and medical professionals who serve your child with you.
I see you rising early in the morning to do it all again after another chaotic night.
I see you when you’re hanging on to the end of your rope for dear life.
I know you feel invisible, like nobody notices any of it. But I want you to know I notice you. I see you relentlessly pushing onward. I see you keep choosing to do everything in your power to give your child the best possible care at home, in school, at therapy and the doctor.
What you’re doing matters. It’s worth it.
On those days when you wonder if you can do it another minute, I want you to know I see you. I want you to know you’re beautiful. I want you to know it’s worth it. I want you to know you aren’t alone. I want you to know love is what matters most, and you have that nailed.
And on those days when you have breakthroughs, those times when the hard work pays off and success is yours to cherish, I see you then too, and I am proud of you.
Whichever day today is, you’re worthy, you’re good and I see you.—Author Unknown