Patient Knows Best?
This is totally atypical for Duchenne, very out of the blue and completely unexpected. So this morning started normal. I get Ashton...Read More
Category: Clinical Trial
This is Huge!
Great news! Somebody pinch me!! I must be dreaming!!! I have been hoping but not really expecting Ashton to meet the...Read More
Screening Visit Day Two
Ashton was happy this morning about not having to arrive for his appointment fasting. All that was on his agenda...Read More
Screening Visit Day One
Monday morning we walked out of the hotel and wow, the humidity last night was nothing compared to this morning....Read More
The Drive Behind the Journey
[caption id="attachment_1093" align="aligncenter" width="300"] Lone Wolf[/caption] [caption id="attachment_1092" align="aligncenter" width="300"] Dreams[/caption] I frequently add text and sometimes borders to my...Read More
On the Road Again
Iowa City here we come! Today Ashton and I embarked on our long awaited trip to the University of Iowa Children's Hospital...Read More