Good, Bad and Ugly

Action 4 Ashton > Duchenne Life > Good, Bad and Ugly
Tough Day
Tough Day

Yes, I know it goes by too fast but I usually find it so exciting watching my children grow up. So not true with Duchenne! I have been dreading Ashton reaching the double digits since his diagnosis 4.5 years ago. And with good reason too. This is Ashton at 9 years and almost 2 months old after school mid week. He gets a few feet off the bus, gets out of his wheelchair and collapses to the ground. After laying there a while he managed to get to sitting up and plays with paper cats he made in school, nearby leaves and asks little sister to find him some sticks. When he is finally ready to go in the house it is extremely difficult for me to lift him up and get him to standing. He keeps growing bigger and his muscles keep getting weaker:(. Good that Ashton can mostly manage getting in and out of his wheelchair himself for now and that Cooper watched over him while he was resting. Bad that a 9 year old boy’s after school playtime is reduced to sitting outside. Ugly that Duchenne is 100% relentless in slowly taking life away from children. [DJW-10/15/2015]

©2016-2019 Action4Ashton.org